Passionate to help Motor Neurone Disease sufferers

Susan Dickson thanks Julie Hooper for her informative narrative of the work of the Motor Neurone Disease Support members at the Regional meeting.

Julie Hooper joined MND New Zealand (our 2018 At Home Appeal), recently as a support worker, but she has held a similar position in the UK for several years.

She shared her passion for helping people and families living with motor neurone disease with Christchurch Region Three members at a meeting in Methven.

Julie’s territory includes most of the South Island.

Motor Neurone Disease (MND) is the name of a group of diseases that cause the death of the nerve cells (neurones) that control the muscles that enable us to move, speak, swallow and breathe.

Degeneration of the motor neurones result in progressive muscle wasting and weakness because the nerve supply to the muscles is impaired.

Julie’s presentation gave her listeners a good understanding of the facts around MND.

  • The number of people living with MND in NZ is around 300 each year with there being up to a one in 300 change of developing MND. MND effects people from all communities and walks of life.
  • Most people diagnosed with MND are over the age of 40 and it effects more men than women.
  • Most people with MND will live for two – four years after symptoms appear but some can live ten years or more.
  • Each week MND will cause the death of two people in NZ. This disease is more often not linked to any family history, only 10% of cases are shown to be inherited.

These facts and the stories of some of the people she supports in her work moved the audience and made them enthusiastic to get behind our 2018 At Home Appeal.

The MND NZ website is a valuable resource, www.mnd.org.nz.

As well as more detailed information about the disease and inspiring personal stories, there is a great Fundraise For Us page. Check out the A-Z of fundraising ideas. There are some really fun ideas.

The response to our At Home Appeal is always humbling. It is another way to live Margaret Fletcher’s charism, to live Faith and Service.

The response to our At Home Appeal is always humbling.

It is another way to live Margaret Fletcher’s charism, to live Faith and Service.